Coping With Tardive Dyskinesia - Online Resources

Tardive dyskinesia typically results as a side effect of neuroleptic (antipsychotic) medications used to treat schizophrenia and other forms of mental illness since the early 1950s. These medications operate by blocking dopamine receptors in the body. Dopamine is the neurotransmitter that carries signals from the brain to various systems in the body, regulating bodily functions.

Patients with tardive dyskinesia who have difficulty locating local resources will find no shortage of support groups, educational resources and forums online.

Educational Resources

The Worldwide Education and Awareness for Movement Disorders (WEMOVE) is one of the most comprehensive resources for virtually every known movement disorder from ataxia (jerky movements and difficulty in maintaining a normal posture) to Wilson's disease (tremors and impaired muscle function due to copper poisoning of the liver). WEMOVE provides a discussion forum as well as a searchable database of patient advocacy groups and foundations. This organization partners with Movement Disorder Virtual University, where patients can get information about the latest research and clinical trials.

Mental Health America (formerly the National Mental Health Association) is a 100-year-old non-profit organization that advocates for the mentally ill, offering a number of different programs through its nationwide network of affiliates.

For scientific information on disease and treatment, WebMDand MedicineNet are two of the more reliable resources online. MedicineNetis a network of Board-certified healthcare practitioners who provide up-to-date information on a range of medical issues and WebMD is more focused on health maintenance and prevention. Content on WebMD is reviewed by an independent board of medical experts.

Genetic Alliance is a Washington, D.C.-based non-profit advocacy group. The alliance offers online tools for activists as well as free, downloadable publications and a listing of local events for those in the D.C. area.

NORD, the National Organization for Rare Disorders offers information on medication assistance, networking and more. Resources include a database of 2,000 organizations and state and federal agencies dedicated to patients with rare diseases that otherwise get little attention.